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Has anyone really gotten over CIDP?

Autoimmune Diseases | Last Active: May 20 11:48am | Replies (49)

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@slkanowitz

Harley, Dr S wants me to take Rituximab but my insurance denied it based on it’s not an FDA approved indication for CIDP. I was just hospitalized for 4 days with worsening CIDP and it’s so frustrating to have the insurance company refuse to approve the drug my neurologist wants for me. I am sick of having to fight so hard to get what I need to be able to walk and live decently! I barely have the energy to get through the day let alone fight with insurance company and beg for help to stay out of a wheelchair.

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@slkanowitz
I am so sorry for your suffering and can empathize with your frustration when needing to fight for proper care and how the insurance companies make everything so difficult. If possible, see if your doctor can call and appeal with the insurance company to use the drug off label.