Finished with treatment at ca. proton cancer center. Was amazed at how much easier than I thought it would be. My discomfort before radiation was pretty bad. After about 2 weeks that pain was almost gone because the pain was from tumor blocking me up. Tumor shrunk and so did that pain. Had some blistering from the radiation, but nothing to write home about. Was very manageable with topical lidocaine and an occasional pain killer. The worst was diarrhea from the combination of radiation and chemotherapy. I was taking chemo in pill form. Unfortunately when I had diarrhea I could not get radiation because I couldn’t control my bowels and that set me back a week. Stopped taking chemo and was able to resume. I am now home and feeling great. I little tired compared to “the before”, but living a normal lifestyle. I have appointments set up for next month for pet scan and follow up. I will keep you posted on the results.
Went to a dinner party and got diarrhea (milk in the dessert) but was able to hold it just fine until I got home.
So my sphincter muscle is working just fine. Friends and family stayed with me, but I really didn’t need help.
I mean I aced it! I was very lucky. I hope your husband has the same experience.

@clarkshir, how is your husband doing on 5FU and radiation? How many more treatments does he have?