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Yale Paper: Long COVID/ME/CFS

Post-COVID Recovery & COVID-19 | Last Active: Oct 15 1:52pm | Replies (27)
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@welchllb

And I thought my SOB, lack of balance, etc. was bad. I am now thankful I don't have Lymphedema!! This week my Neurologist thinks my Long Covid, former CFS and POTS are related. No solutions offered yet. Still taking Mestinon for now and trying to function as I can.

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Replies to "And I thought my SOB, lack of balance, etc. was bad. I am now thankful I..."
jeindc | @jeindc | May 20 12:28pm

I have found, for some reason, the last few weeks even more difficult, perhaps because I thought the lymphedema wraps would help more than they are.

It's that doctors just don't believe this is real. Or "it can't be THAT bad" -- when it is.

To us all, if we had a lobby that went to state capitals and to the Senate and House in DC, maybe we'd be heard. For those in other countries, are you being heard more than those in the US?

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