Member Neuropathy Journey Stories: What's Yours?
This discussion was created as a place for members to share their journey with neuropathy. This will allow members to easily learn from each other what has helped them and hopefully help new members avoid some of the painful and difficult struggles some of us have faced. The following is a suggested outline for sharing your story that would be helpful for other members for comparison to their own neuropathy story.
— When did your neuropathy start? What were the symptoms? When and how was it diagnosed?
— What treatments or medications have you tried?
— What side effects have you had, if any?
Optional:
— What would you tell your best friend if they told you they had neuropathy?
— What activities have you had to give up because of neuropathy? What do you instead?
— How has your life changed socially? at work? at home?
What's your neuropathy story?
Note: If you want to ask a question for another member who has posted their neuropathy story here in this discussion, be sure to add their @membername in your post, for example @johnbishop. Your question may already be discussed in other neuropathy discussions. Be sure to check here first: https://connect.mayoclinic.org/group/neuropathy/ That way this discussion can be reserved for member neuropathy stories and hopefully make it easier to read and find similar symptoms to your own.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Why? —- I have a “damage of nerve” that started 2 years ago by falling down on my garage on my rear ends. 😕
What? —- That pain hit from my rear ends to the bottom under my feet. No more cutting the grass; no more walking outside; kills my balance; no more fixing the outside or inside house; and on…😟
Treatment use? —- I tried pills to get rid of pain in my body. I have a TBI accident 12 years ago, but I didn’t want or need my pain-meds UNTIL falling down in my garage. During that, I took these pain-meds in my low body. Well, that shorts helped my (feels like 50% on my body), but still no more cutting our grass… and the rest of my problems. Well, shortly, that meds didn’t fit. The pain - 100% of it - was killing me, BUT by sitting down is great… the pain ends. Who do you stand-up? I need that fit a lot of our needs: going to a bathroom; helping my wife for foods & others; going to other doctors; going to the drug store; buying our different stores - like COSTCO; and on…😠
What side effects? —- pain from my 2 rear ends to the bottom of my feet.. some of the pain moves little or no feeling on my right side from foot; my right-side if my leg goes thru little feeling of my foot and adds other less-usage on the weakness that could fall down. It’s a funny way, my right-side was stronger by lifting (before my TBI).🧐
>>>GOOD<
Shoot… I lost the writing the GOOD options, shoot. Well here it is, a short tiny thing:
❤️GOOD❤️ options —- 3 weeks ago, Doctor A, it took 4-5 hours inside my back, close to my tight-side rear end. He put this, yes, this nerve moved between two sides and hit both of them. He moved it and the pain is gone. Ok, I’ve got the other “problems” including my unbalance at could or was falling down on my front of backwards, That hits my brain area. ❤️ No More Pain!!! ❤️ Well, my exercising from my read-ends to the bottom for my bottom legs is my need daily!
Hi and like your learn, alter and then accept. Not loving it but so true.
I have so much pain and bad back and wonder if others deal with it. When you reach out to others you are a cry baby. This is major pain. Scary