Hi @tonyde
I might have had this experience in my tonic clinic seizure in 2019, but I can not remember well. But, today I for sure know how my epilepsy and gut are interconnected and how seizures have an impact on this part of my body. Most of the time, after having a seizure (my seizures are mostly focal/partial complex seizures), I have to go to the toilet. By taking gluten out of my diet since January 2022, my seizures were reduced by 60%. Since last November, I have been adopting an anti-inflammatory diet and have already seen some benefits in terms of seizures. However, it is too soon to present some statistics.
Perhaps the medication you are taking is also affecting that? While I was taking Vimpat in 2019/2020, I had much nausea and vomiting, having this medication caused SIBO (small intestinal bacterial overgrowth) which I am still treating. I had a hard time with my meals and had to eat many times a day so as to have a minimum quantity of food. Even so, I lost quite some weight (I became like my husband used to say a butterfly filet so thin I became) and muscular mass. Not a good experience. Advise you to check on the medication you are taking if there are any side-effects related to the stomach and gut.
I hope you get better!
Chris (@santosha)