← Return to Fibromuscular dysplasia (FMD): What are next steps?

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@lpyne

Chronic pain in the absolute worst thing when nothing seems to help.
you must be your own advocate- seeking second opinions. I can’t imagine that any doctor would think it’s normal for me to be dizzy 24/7 and nothing helps. And then to be diagnosed with fibromuscular dysplasia on 2 different CT scans - only for them to say “it’s not blocking blood flow to your brain so your fine” ignore it…. Wow! Let me just ignore that until I have a stroke or worse 🙁
Now I’m going to doctors that specialize in dizziness and getting those second opinions.
I’m also being my own advocate and getting back in shape physically and emotionally. Some days it’s impossible.. but I do it anyway because in the end every little bit helps. You can do this! Keep your head up!

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Replies to "Chronic pain in the absolute worst thing when nothing seems to help. you must be your..."

Yes, pain rules my mind every waking hour. I tried doing some recommended exercises only to have my pain ramped up even worse. I can't even walk around our communty with my wife. A short walk of a couple hundred yards sends the bottom of my feet into severe burning mode. I am getting my old, non-functional spinal cord stimulator removed this coming Monday. Then, I will be able to finally get an MRI and, hopefully, find out what's going on with my back.