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Fibromuscular dysplasia (FMD): What are next steps?
Stroke & Cerebrovascular Diseases | Last Active: Oct 2 4:12pm | Replies (29)Comment receiving replies
That is exactly my plight. I have told the innumerable pain docs over the years, "Look, the principle of cause and effect...I am in severe, chronic pain. That is the effect. There is a cause. Now, it's your job to find the cause.". Each doc just wants to put a band aid on the pain with injections, PT, and who knows what else. So, I say, "How about reaching out to the medical community? Surely someone has had experience with this". Oh, no, they say. I am the expert. I don't need any other doc chiming in. Bah, HUMBUG!
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Chronic pain in the absolute worst thing when nothing seems to help.
you must be your own advocate- seeking second opinions. I can’t imagine that any doctor would think it’s normal for me to be dizzy 24/7 and nothing helps. And then to be diagnosed with fibromuscular dysplasia on 2 different CT scans - only for them to say “it’s not blocking blood flow to your brain so your fine” ignore it…. Wow! Let me just ignore that until I have a stroke or worse 🙁
Now I’m going to doctors that specialize in dizziness and getting those second opinions.
I’m also being my own advocate and getting back in shape physically and emotionally. Some days it’s impossible.. but I do it anyway because in the end every little bit helps. You can do this! Keep your head up!