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PMR - Decreased prednisone and pain returned

Polymyalgia Rheumatica (PMR) | Last Active: May 28 1:36pm | Replies (157)
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@art43

My rheumy told me at the outset that I would be having some pains during the taper process, implying that I should stick to the taper anyhow. Once my inflammatory markers were normal, any pains were not PMR, so I should not be tempted to think of increasing the prednisone. And so I fought through some level 2 hand/wrist/thumb pains while tapering from 8 to 6, and now I am at 5 with no pains anywhere. Best of luck to you in the journey.

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Replies to "My rheumy told me at the outset that I would be having some pains during the..."
ekgilpin1 | @ekgilpin1 | May 21 5:55am

My rheumatologist told me the opposite. She said if I’m still experiencing pain, PMR is still present. I don’t know who to believe anymore.
I have tapered down on Prednisone to 3.5 mg. I found that tapering by 1/4 mg at a time and staying on it for two weeks works best for me. I do have some minimal pain, mostly in my arms. But it has not increased.
I plan on having my adrenal glands tested when I get down to 3 mg. This has been a two-year journey for me.

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