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← Return to Vomiting and Nausea after BMT
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Lori you have brought me some encouragement for sure. Like you it knocked me to my knees also.
I like you am in excellent health that’s the reason I did so well with my liver TP. The only reason it was caught is bc I get labs each month. I was on a lot of immunosuppressants which I feel suppressed my system to much. “ of course Drs. r not agreeable to what I say.. “lol but I cannot dwell on that.
Since I have been completely taken off Prograf/celcept my liver numbers are perfect, kidneys are so much better. I am amazed. I never have had to take any medication until my LTP.
I have so far tolerating chemo/chemo pill. still trying to keep active, positive 🙏🏻 that I will have the same prognosis that you have been given so blessed to hear your fabulous news😊
I will definitely keep you posted, it’s so weird I had not been on the site low and be hold I saw this post.
Lori thank you again for your encouraging words.
This is all so new to me dx 3/18/24 started chemo the next day. It’s been overwhelming to say the least but I made it thru my LTP and did so great.
😊😊
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You and I are much alike with being so fit and healthy. I never took any pills except vit D3. Before my diagnosis, at 65 I was walking 10 miles daily and had no shortage of energy…biked, mowed lawn, gardened, etc.. Then poof, there was a 3 week steep decline with weekly trips to my doctor who would tell me I was looking great and there’s nothing wrong. Even though I had an awful cough, sustained fever of 102, rapid weight loss, extreme fatigue and pasty white skin. I looked like death warmed over! AML is not subtle!
The 3rd week, my husband literally carried me into the doctor’s office saying, “My wife is not fine and she needs blood work because something is not right!” Later that day she called to tell me that the oncology dept at my local hospital is holding a room for me and I should get there asap. What?? So I asked what’s going on…to which she replied, “Apparently you have leukemia!” Well, mike drop for sure! Boom 🎤 Obviously she is no longer my primary care physician. LOL.
Your story is blowing me away! I didn’t think it was possible for organ transplant patients to stop taking Prograf or Cellcept! That’s amazing! So what a bummer to now have AML. Not sure if your previous meds had any impact on that or not. Many times AML is caused by a random mutation. As was my case…totally random event with no assignable cause. All of my hematologists (local and Mayo) concurred with that. I’d had a physical with blood work just 7 months prior my diagnosis and there wasn’t a hint of anything brewing. But once a mutation happens it can set the chain of events rolling quickly.
I’m so glad you saw this post. But this level of nausea is one of the more gnarly sides of transplant and not everyone has this happen. So if you are able to go ahead with the transplant I’ll scoot you over to this discussion:
~My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
There are quite a few of us who have undergone this life saving, second chance with life procedure! So you’re definitely not alone in this journey. 5 years ago no one would have convinced me that I would ever feel this good again. But honestly, I’m back to 99% normal and feel like nothing ever happed. So if I can offer hope to others, that’s my mission in life now. ☺️