Best wishes to you. It is not an easy path trying to find care.

Hi- Just wanted to say that I had an appointment with Dr. Tae Chung in the POTS Clinic at Johns Hopkins earlier this month, and for the first time, u feel hopeful. It will be a long process, but he genuinely seems to want to help.

I had POTS before Long COVID, but he’s also on their Long COVID team, I think? It sounds like one thing morphed into another.

I also saw one of the PTs who works with POTS and Long COVID, and she was also great.

I live nowhere near, so if you live close, it may be worth trying to schedule or getting on a wait list.

I’ve also heard positive things about Stanford, but I had already gotten an appointment at Hopkins, so I stuck with that. Wishing you the best of luck.

I'm in my fourth year with Long Covid - I have been going to Stanford's Long Covid Clinic and have been very disappointed - Pleasant docs but offered no help - Tried Naltrexone which helped nothing - I read a book by Dr. Carla Kuon from the Long Covid Clinic at UCSF in Emeryville, CA entitled The Long Covid Solution: A holistic integrative approach to Post-Viral Recovery - It is dizzying to read - So much information with lots of recommended supplements etc - I'm still combing through it to see what I might feel would benefit me - I won't take everything she recommends - A doctor friend recommended Mayo Clinic's Long Covid Clinic - His brother went there and said he got some help, but I haven't been able to connect with him yet to get the specifics