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@j77

I heard Stanford was Good too.I wish I lived closer to California.I spoke with a girl that went there for help with so many issues from Long Covid and she is so much better now.I think they really look outside of the box there.I am close to John's Hopkins,but I don't know if they will be any help.The best doctor at John's Hopkins could not even figure out I had thyroid disease.Luckily a local doctor figured it out.

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Replies to "I heard Stanford was Good too.I wish I lived closer to California.I spoke with a girl..."

Best wishes to you. It is not an easy path trying to find care.

Hi- Just wanted to say that I had an appointment with Dr. Tae Chung in the POTS Clinic at Johns Hopkins earlier this month, and for the first time, u feel hopeful. It will be a long process, but he genuinely seems to want to help.

I had POTS before Long COVID, but he’s also on their Long COVID team, I think? It sounds like one thing morphed into another.

I also saw one of the PTs who works with POTS and Long COVID, and she was also great.

I live nowhere near, so if you live close, it may be worth trying to schedule or getting on a wait list.

I’ve also heard positive things about Stanford, but I had already gotten an appointment at Hopkins, so I stuck with that. Wishing you the best of luck.