Hi Wendy. I’m so sorry your son is having such a challenging time with the nausea. For me too, that was the worst part of the whole process. As a mom I’m sure you feel so helpless and frustrated because there is little you can do to change how he’s feeling. I watched my husband age during my whole AML/transplant odyssey. For both of us, my lack of appetite and nausea was the most troubling. That actually started with my chemo for AML and then carried over with the transplant several months later.
For whatever reason, some of us have more nausea than others. I lost a total of 40-50 pounds between the AML chemo and then with the transplant…and I’m not a large person. I understand how frightening this level of weight loss looks and feels. Sadly, malnutrition can take a toll mentally as well as physically.

My husband was determined to get me to eat. I’d instantly get nauseated if a plate of food was set in front of me. So he started creating very small, bite sized, pieces of food for me and only put one or two at a time on a saucer. For instance there might be two little 1 inch square pieces of a PBJ sandwich or a bite or two of Swanson’s Canned white breast of chicken, or he’d broil chicken and cut it in pieces and serve with a veggie. Sometimes it would be little Ritz crackers with cheese and chunks of apple, or a spoonful of hot dish or bite of burger. You get the idea. He brought little jars of baby food and Kozy Shack Rice Pudding. Rice Krispie bars and banana bread were also something I could tolerate. I didn’t do well with Ensure shakes but I could occasionally drink Ensure protein infused juice. I know, some of these don’t sound healthy but my dietician was adamant she didn’t care what I ate as long as there were calories going in. ☺️.

What finally helped to pack meat on my bones, Lactaid Ice cream~Salted Caramel. My husband made me smoothies and for some reason I could drink those and keep them down. There was enough protein, fat and sugar to help me gain weight. Little by little he’d introduce some protein powder into the shakes. That powder has a peculiar taste and even though I lost my sense of taste, I could still ‘smell’ it?

At some point I would think your son’s doctor would suggest a feeding tube. My doctor was going to this for me if I continued to have problems eating. Another person I mentor locally in my home town had a transplant last year and wasn’t able to eat either. Her doctor was concerned and requested a feeding tube for a couple of weeks to provide her with nutrients. It worked to get her jump started back to health. It could be a good option for son. With nutrition, his mental health should improve. It would be wonderful if he could get out of the hospital. That takes a toll mentally as well.
Has his doctor discussed appetite stimulants or a feeding tube?

Hi Wendy, Just checking in to see how your son is feeling. I’m not sure if you’ve seen the replies after you left your message but there have been some helpful suggestions for trying to help your son turn that corner with the nausea after his bone marrow transplant.
I posted quite a few ideas for you since nausea was a pretty constant companion for me with my first 2 months.
https://connect.mayoclinic.org/comment/1068667/
And how are you holding up? Being a caregiver, while rewarding to be able to help your son through this, it’s also incredibly taxing…a true labor of love.

Please let me know how he’s doing, ok? (You too!)