Ah, you have learned that you have to be your own, best advocate. Pain docs and others will not, for the most part, reach out to their fellow wizards for any kind of consultation in regards to your pain unless you are forceful in asking them. Otherwise, keep researching and making appointments to get other opinions. No one else will likely do it for you.

Same here & it's very frustrating.

Different specialists, different scans, different results.
Six months ago it diagnosed then ruled out & recently it was ruled back in.

They also found a small aneurism in addition to the FMD... the clock continues clicking as the condition likely continues to worsen as I am being passed around from one specialist to another.