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PMR - Decreased prednisone and pain returned
Polymyalgia Rheumatica (PMR) | Last Active: Mar 19 10:14am | Replies (169)Comment receiving replies
hello @virginiaj and @sherylp
good morning --Virginia's plan is pretty much my routine as well ; and do not overdo : )
Because of PMR I went on medical leave for 1 1/2 months last spring and then retired in Dec . I have tapered from 30mg to now 2 mg . The Prednisone withdrawal created some weird, unusual bouts of pain and fatigue at the 7mg to 3mg range - but all the discussions in this PMR group about adrenal insufficiency etc. were a big help for me to navigate thru.
I will say this - at suboptimal doses of Prednisone last year, i had really prolonged shoulder stiffness exactly 2 days after using my arms above my head ( pruning, using blow dryer , zumba in the pool ) . I noticed a few other commenters who mentioned the same observation at 48 hrs after ( some kind of activity) .
I will attach a manuscript from Germany that i found last year - an interesting take on exercise and PMR and women's health - let me find it
Replies to "hello @virginiaj and @sherylp good morning --Virginia's plan is pretty much my routine as well ;..."
@nyxygirl I have just started tapering from 40 mg to 35 mg. I'm experiencing a dull headache, nausea and tiredness. But most concerning is that I've developed a painful right shoulder. My original PMR symptoms did not include upper body pain.
I use a mouse with my laptop and I'm wondering if I'm simply developing some kind of repetitive stress injury separate from the withdrawal. On the other hand I am concerned that it's a relapse that's now affecting my shoulders. I do not have any hip/thigh discomfort as before. Has anyone just been affected in one shoulder? It seems PMR can follow some atypical courses.
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i will attach two papers that are in my collection _ The German group has a good summaries and
I sent this group an email and mentioned their comment :
Nondrug therapy Patients, especially older patients with impairment of physical function, should be offered exercise programs alongside drug treatment (OCEBM evidence level 5). -I wrote-"This comment is really resonating with me — So many people were so active before and are now struggling with returning to some kind of activities. You can tell that retirees are still playing golf - with some bad outcomes of torn tendons in their arms !? I personally am exercising in the pool and walking and bird-watching "
The second paper has some good info too .
Sheryl - have you seen this web site - PMRandIL6.com ? scroll to resources tab and down to find videos.
colombo 2022 -german grp Dtsch_Arztebl_Int-119_411 (colombo-2022-german-grp-Dtsch_Arztebl_Int-119_411.pdf)
austprescr-41-14 2018 prescribing PMR (austprescr-41-14-2018-prescribing-PMR-.pdf)