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AND this is just it - there is no repository for all the different symptoms to be collected. Here, we share. Other groups too no doubt. And it's by chance we find another who has 'our' symptoms -- which helps because at least when doctors and others roll their eyes, we an say there is at least one other person.
How might I learn more about the homeopathic treatments you are undergoing? So far all I have (just this week) are the leg and feet compression devices - my hands are too arthritic to pull on compression socks. I tried wearing leg and feet all day yesterday and thought it was far worse by last night than otherwise. Today, just leg wraps.
Was your lymphedema associated w/ rashes at all? Any cracking of skin on your feet? (Mine is on the bottom of my heels and is miserably painful.) The residual impact of one of the rashes resulted in so much pain on my right leg that walking has become a challenge.
Re Epstein Barr virus: it's on my list of issues for any of the doctors I'm seeing to test, and for my conversation next Fri. w/ the Georgetown Univ. Hospital COVID clinic.
Thank you so much for responding. It's oddly soothing to know it's not just me.
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For the record, I’m Keith!
My symptoms of lymphedema began a few days after my Covid bout ended in early 12/22. My case was relatively mild… treated with Paxlovid and tested negative after day 6.
Since my hands were swelling as well I also have great difficulty with putting on compression socks. I now have Sigvaris Velcro socks (and gloves). Also have a pair of generic zippered compression socks.
As an aside, am I the only other lymphedema Covid person you’ve encountered?
As to homeopathy… last summer I was seeing someone who tried very hard with no positive results. For 18 months I’ve been getting once a week lymphedema massages and bandaging. Only small modicum of relief there.
On 4/17 I started to see a new and highly recommended homeopath. He exudes confidence… and by extension gives me some hope.
He had me get bloodwork at a Quest diagnostics here in Las Vegas. Most of the results were well within the Quest normal range. Not nearly normal for the homeopathic practitioner.
I have stuff going on with Cysteine, Dhea, vitamin d, and about 9 or so other things.
My titers for Epstein Barr virus were elevated and he wants me to get intravenous ozone treatments for that.
I am also getting subcutaneous shots of Helleborus… think it’s for swelling.
He has requested dietary changes (eat for my blood type). I have been unable to begin the diet regimen as I just began implant surgery for a tooth… so soft food at room temperature or colder for a while.
The good news homeopath wise is I have seen a tiny bit of improvement ( I had sores in my mouth from lymph swelling of face… they went away). Also my knee joints had been very achy… now the pain is under a 1…. Used to be 4.
I’m certain there’s bunches more to tell. Next missive!
Keep in touch, please. Hopefully something I’ve mentioned will assist you on your recovery.
Keith