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Support Group for Those of Us Living With Mild Dementia

Aging Well | Last Active: 18 minutes ago | Replies (133)
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@misspatty

I had the same experience - here you are having received devastating news and trying to process that you have a condition that has no cure and will only get worse. And the PA and the Neurologist can't wait to get you on a drug that has poor success rates and serious adverse effects. I know those of us diagnosed with Alzheimer's are feeling rather desperate to do anything that might buy us some "sound mind" time - but at what risk?
I have decided not to even try the Lequembi. I felt pressured and think they were seeing me as a guinea pig and not a person. I pray that there will be break throughs for new effective treatments that don't have such serious risks.

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Replies to "I had the same experience - here you are having received devastating news and trying to..."
janieohrn76 | @janieohrn76 | May 18 11:31am

I agree with you!

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pb50 | @pb50 | May 18 2:45pm

My neurologist and NeuroPsychologist also diagnosed me with Mild Neurocognitive Disorder. But they opened the discussion with a statement that although I would meet the criteria for the drug, they believe that - for me - the risks of brain bleeds outweighs the benefits. I agreed. We will get together in a year and see how I have progressed.

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janieohrn76 | @janieohrn76 | May 20 10:47am

Did anyone get a pet scan? I also in early stage have a voice difficulty problem which caused me to see the Neurologist actually, so she did a Beta Amyloid blood test and said because of that I have dementia along with MCI, then had another cognitive test at just age related dementia. Anyone else have similar symptom? Also wanted me to get on infusion, which I’m against.

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