Connect
← Return to Support Group for Those of Us Living With Mild Dementia
Discussion
Support Group for Those of Us Living With Mild Dementia
Aging Well | Last Active: 5 days ago | Replies (221)Comment receiving replies
I had the same experience - here you are having received devastating news and trying to process that you have a condition that has no cure and will only get worse. And the PA and the Neurologist can't wait to get you on a drug that has poor success rates and serious adverse effects. I know those of us diagnosed with Alzheimer's are feeling rather desperate to do anything that might buy us some "sound mind" time - but at what risk?
I have decided not to even try the Lequembi. I felt pressured and think they were seeing me as a guinea pig and not a person. I pray that there will be break throughs for new effective treatments that don't have such serious risks.
Replies to "I had the same experience - here you are having received devastating news and trying to..."
My neurologist and NeuroPsychologist also diagnosed me with Mild Neurocognitive Disorder. But they opened the discussion with a statement that although I would meet the criteria for the drug, they believe that - for me - the risks of brain bleeds outweighs the benefits. I agreed. We will get together in a year and see how I have progressed.
Did anyone get a pet scan? I also in early stage have a voice difficulty problem which caused me to see the Neurologist actually, so she did a Beta Amyloid blood test and said because of that I have dementia along with MCI, then had another cognitive test at just age related dementia. Anyone else have similar symptom? Also wanted me to get on infusion, which I’m against.
Connect
I agree with you!