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I, too, have been suffering (since 12/2022) from post Covid lymphedema…. Ankles, legs, hands, arms and likely head as well. No one seems to able to do anything but try to treat symptoms (leg wraps, compression socks and gloves, etc.)
I recently began homeopathic treatments… expensive but hopefully will show positive results.
I also have been accepted into a clinical “wearable device” long Covid study with Scripps in California. I’m keeping as proactive as possible. You are the only other person I have encountered with long Covid lymphedema. Hopefully we’ll get some positive way of attacking the cause.
Homeopath has found high titers for Epstein Barr virus. I will be getting IV ozone to treat that.
Good luck to you. I will share and results when I have them
Replies to "I, too, have been suffering (since 12/2022) from post Covid lymphedema…. Ankles, legs, hands, arms and..."
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AND this is just it - there is no repository for all the different symptoms to be collected. Here, we share. Other groups too no doubt. And it's by chance we find another who has 'our' symptoms -- which helps because at least when doctors and others roll their eyes, we an say there is at least one other person.
How might I learn more about the homeopathic treatments you are undergoing? So far all I have (just this week) are the leg and feet compression devices - my hands are too arthritic to pull on compression socks. I tried wearing leg and feet all day yesterday and thought it was far worse by last night than otherwise. Today, just leg wraps.
Was your lymphedema associated w/ rashes at all? Any cracking of skin on your feet? (Mine is on the bottom of my heels and is miserably painful.) The residual impact of one of the rashes resulted in so much pain on my right leg that walking has become a challenge.
Re Epstein Barr virus: it's on my list of issues for any of the doctors I'm seeing to test, and for my conversation next Fri. w/ the Georgetown Univ. Hospital COVID clinic.
Thank you so much for responding. It's oddly soothing to know it's not just me.