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PMR - Decreased prednisone and pain returned
Polymyalgia Rheumatica (PMR) | Last Active: May 28 1:36pm | Replies (157)Comment receiving replies
This is my 3rd bout. My starting dose was 10 and I never needed to go higher. I am now on 1, tapering to 1/2. The advice I got was to do range of motion exercise, avoid overdoing. I walk, go to aerobics and do gardening and lawn work. At one point, I was removing hostas, jumping on a shovel and also kneeling on concrete, planting flowers next to a driveway and ended up with a severely swollen knee, which curtailed my activities for a long time. So would suggest you not overdo. Otherwise, I still enjoy all these activities and have obtained what I call a “little old lady” gardening bench which I sit on to weed or plant.
Replies to "This is my 3rd bout. My starting dose was 10 and I never needed to go..."
hello @virginiaj and @sherylp
good morning --Virginia's plan is pretty much my routine as well ; and do not overdo : )
Because of PMR I went on medical leave for 1 1/2 months last spring and then retired in Dec . I have tapered from 30mg to now 2 mg . The Prednisone withdrawal created some weird, unusual bouts of pain and fatigue at the 7mg to 3mg range - but all the discussions in this PMR group about adrenal insufficiency etc. were a big help for me to navigate thru.
I will say this - at suboptimal doses of Prednisone last year, i had really prolonged shoulder stiffness exactly 2 days after using my arms above my head ( pruning, using blow dryer , zumba in the pool ) . I noticed a few other commenters who mentioned the same observation at 48 hrs after ( some kind of activity) .
I will attach a manuscript from Germany that i found last year - an interesting take on exercise and PMR and women's health - let me find it
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Thank you for the advice. I had been doing my Silver Sneakers routine but stopped because I wasn’t sure if I would aggravate this unknown condition, but now that I have a diagnosis and a treatment, I will just need to test things out for myself. I imagine stress is especially hard on PMR symptoms as well as overdoing physical activity. I am starting my journal today. We will see. Thank you again.