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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: May 29 7:12pm | Replies (422)
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@artemis1886

IVIG therapy intravenous immunoglobulin. It helps build up your immune system. It has been known to slow down the progression of neuropathy. IVIG therapy can also help with nerve regeneration. It takes approximately six months before you see the difference. If stopped the neuropathy will progress really fast. Once you are on it you are supposed to be on it for life. It is expensive but you can get the medication discounted through the manufacturers patient assistance program.

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Replies to "IVIG therapy intravenous immunoglobulin. It helps build up your immune system. It has been known to..."
jchet | @jchet | May 27 9:49am

Were you pleased with your visit (s) with Dr. Oaklander? I have peripheral SFN and read her articles and listen to her on YouTube.

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nbailey7uh2edu3 | @nbailey7uh2edu3 | May 28 11:09am

I have been on IVIG infusions for about two months, every two weeks. Because of a little "sleepy" feeling in my fingertips ten years ago, I was diagnosed with Idiopathic Peripheral Neuropathy, without any further recommended action. About a year ago I began to have a little "sleepy" feeling in my feet, which started progressing about three months ago. I went to another neurologist this February and asked to have the cause diagnosed, if possible, to determine a treatment.
About the first of March I was diagnosed with Chronic Inflammatory Demyelinating Polyradiculoneuritis (CIDP) after imaging tests, nerve tests, spinal tap, etc., and started IVIG infusions. The nurse told me I should have started the IVIG treatment years ago. I am in no pain, but have occasional cramps, weaker legs with poorer balance, and the "sleepy" feeling in my feet and mostly lower legs. If the infusions do not stop, slow, or reverse this neuropathy, what are the progressive signs and symptoms? I want to know what to expect for any scenario. I understand IVIG therapy may be required for years. Will I develop constant serious pain, be on a "walker," or what??? 🙁 I am only eighty-seven years of age. My goal since about the age of twenty is to reach one hundred being mobile and able to think.

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