Hesitant to begin drug treatment for my osteoporosis

Good evening @windyshores, Do you know where the information about negative cancer presence with Forteo and Tymlos might be recorded?

May you have happiness and the causes of happiness.
Chris

Thank you for that info!!!
Do you go to a doctor at Mayo?

One more thing: the two year limit has been lifted after the black box warning on bone cancer was removed from Forteo. The same will no doubt happen with Tymlos: it is just newer.

Hi grammy9.......I am 5' 1 (or maybe 5' 0' by now, but not sure) and weigh 99 lbs. Yes, I have found you can never say anything to a doctor that may differ from what they think is set in stone, or may suggest they don't know everything.

Thank you!

@artscaping the lifting of the black box warning and extension of treatment duration for Forteo is all over the Internet. Sorry I would have posted sources but it is pretty common knowledge at this point though old info is still online and confusing.

As a quick example of sources: https://www.ccjm.org/content/88/9/489

Here is a more detailed study review:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9465003/
some quotes:
"No cases of osteosarcoma were observed in the clinical trials of patients treated with teriparatide"

"These studies showed no increase in osteosarcoma in patients using teriparatide compared with unexposed groups, as well as to the expected population‐based background incidence of the disease. Based on this real‐world evidence and the totality of data collected from postmarketing use and other clinical investigations, the label was updated in 2020. The changes included addition of information from large observational studies using real‐world evidence, removal of the boxed warning, and a revision of the 2‐year lifetime limitation."

It is also in Keith McCormick's book "Great Bones," and two of my doctors have told me this as well. Several others have posted on these changes on Connect.

So haven't been on the tymlos or forteo yet? You are not doing anything yet?
I am getting a second opinion and then hopefully will make a decision. My spine dexa score is -3.2.

I have a long history of not tolerating pharmaceuticals and even some supplements. I've also had adverse reactions to homeopathic remedies. They have sent me to the ER numerous times throughout my life....that's why I am not hopeful about Tymlos no matter how many other people are fine with it.

No I'm not doing anything yet because I just got diagnosed, and the doctor wants to run some more tests, and I'm still in shock, sort of. I've been checking things out...but whatever I do, I won't rush into anything... after all, I did not get this way overnight and there isn't a quick fix.

@lolamarie I am also sensitive to many things: foods, meds, scents etc. I have a long list of meds I cannot take and am limited in treatments. I also have lupus and atrial fibrillation which limit drugs. For years I tried osteoporosis drugs and could not tolerate them, During cancer treatment my endocrinologist was too nervous to prescribe Reclast, which landed me in a dire situation with fractures.

Tymlos was a godsend for me, because after going to the ER after a full dose, I restarted at 1/4 dose and slowly moved up. It felt miraculous as I was able to consistently do almost a full dose for the rest of the two years and my spine went from severe to borderline.

You may find you tolerate something else so not suggesting anything just letting you know that many of us are very very sensitive to meds but find something that we can tolerate that works.