1. < Neuropathy

Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

ktpatton | @ktpatton | May 14 6:54pm
In reply to @johnbishop "@ktpatton I wear my 20-30 mmhg compression socks during the day with shoes or slippers in..." + (show)
@johnbishop

@ktpatton I wear my 20-30 mmhg compression socks during the day with shoes or slippers in the house. I take them off at bedtime but do put on longer loose diabetic socks after putting lotion on my legs to moisturize the skin. I do have idiopathic small fiber peripheral neuropathy but the socks don't help with that for me. They were prescribed to help control the leg swelling caused by my lymphedema in both legs. Did your doctor suggest the amount of compression for the socks, like 15 to 20, or 20 to 30 mmhg?

Jump to this post

Thank you for your reply. The doctor made no mention of the amount of compression, but I can ask. The tag only lists the materials used in the socks. My receipts simply says "Hyper Grip Compression Socks (hgc).

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | May 14 7:21pm
In reply to @ktpatton "Thank you for your reply. The doctor made no mention of the amount of compression, but..." + (show)
@ktpatton

Thank you for your reply. The doctor made no mention of the amount of compression, but I can ask. The tag only lists the materials used in the socks. My receipts simply says "Hyper Grip Compression Socks (hgc).

Jump to this post

I’m guessing they are non medical grade compression socks. Here’s some info on them
https://vanishlegveins.com/medical-grade-vs-non-medical-grade-compression-stockings-which-are-better-for-me/

REPLY
1 reply
bigjohnscho | @bigjohnscho | May 15 6:41am

I have been suffering from burning feet for a long time. I’m guessing but Ithink it started when my GP put me on mirtazapine. Has anyone experienced this.

REPLY
aaron_az | @aaroncush | May 16 12:28pm

Thanks to Reddit I found this new study using Oxybutynin gel for diabetic neuropathy: https://link.springer.com/article/10.1007/s00401-024-02710-4

“A randomized, double-blind, placebo-controlled interventional trial was performed in subjects with type 2 diabetes and established peripheral neuropathy. Subjects received daily topical treatment with 3% oxybutynin gel or placebo for 6 months. The a priori designated primary endpoint, significant change in intra-epidermal nerve fibre density (IENFD) in skin biopsies taken before and after 20 weeks of treatments, was met by oxybutynin but not placebo. Secondary endpoints showing significant improvement with oxybutynin treatment included scores on clinical neuropathy, pain and quality of life scales.”

REPLY
doors4ever | @doors4ever | May 16 3:43pm

These worked great fot me after trying just about everything else.
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Brand: LUAUTO4.6 5
Neuropathy Socks - Ankle Compression Sleeve for Foot - Stunor Dr.Neuropathy Socks - Neuropathy Plantar Fasciitis Achilles Ankle Socks - Neuropathy Socks for Men and Women

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To choose your size, reference your U.S. shoe size, and refer to the sizing chart in the images; wide range of neuropathy compression sock sizes are available to comfortably fit and soothe all teen to adult men and women foot sizes.
Neuropathy Socks --- Stunor neuropathy socks for women and man are suitable for acute and chronic injuries. The thermally active material of the support belt promotes blood circulation in the affected ankle, warm the ankle and relieve ankle pain.
Superior Comfort and Breathable --- Our comprex compression socks are filled with precious Nano scale Lycra that ensures long-lasting comfort and durability, and takes care of your tender feet.
Relieves Foot Pain --- Soothe socks promote blood flow to relieve swelling and provide energy for tired, aching feet and ankles. Which provides ultimate pain relief from a variety of ailments including plantar fasciitis, arthritis, sprains, swelling, tendonitis, muscle fatigue, and other ankle pain.
Relieve foot pressure --- Neuropathy compression socks provide soothing compression to your sore feet and ankles; toeless therapy socks effectively increase blood flow circulation and decrease painful swelling along the foot, providing pain relief to your feet.
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I recently tried these neuropathy compression socks to help alleviate some foot and ankle discomfort I've been experiencing. They're designed to provide targeted compression and support. The socks are made from a blend of nylon and lycra materials that allows for a... See more
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REPLY
joanland | @joanland | May 16 8:08pm

Within the last month (or so), on one of the peripheral neuropathy forums, someone posted that "statins cause neuropathy." And to take Repatha instead of a statin. Does anyone know of any research to back this up? I'd like to know more about the relationship between statins and neuropathy. Thanks to all.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | May 16 8:26pm
In reply to @joanland "Within the last month (or so), on one of the peripheral neuropathy forums, someone posted that..." + (show)
@joanland

Within the last month (or so), on one of the peripheral neuropathy forums, someone posted that "statins cause neuropathy." And to take Repatha instead of a statin. Does anyone know of any research to back this up? I'd like to know more about the relationship between statins and neuropathy. Thanks to all.

Jump to this post

Here’s a search link that you can use to find discussions by typing neuropathy and statins - https://connect.mayoclinic.org/search/

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1 reply
joanland | @joanland | May 16 10:34pm
In reply to @johnbishop "Here’s a search link that you can use to find discussions by typing neuropathy and statins..." + (show)
@johnbishop

Here’s a search link that you can use to find discussions by typing neuropathy and statins - https://connect.mayoclinic.org/search/

Jump to this post

Thank you very much. That link plus a general search for neuropathy and statins brought up a good research review paper.

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elena_l | @elenal | May 17 6:09pm
In reply to @bunky44 "I can relate to most of these posts....PN is a life comfort stealer. It looks like..." + (show)
@bunky44

I can relate to most of these posts....PN is a life comfort stealer. It looks like there are so many reasons for this malady..some from surgeries, some from illnesses..or injuries. I'm looking for relief from whatever the cause could be..and not with more medications. The different kind of 'socks' looks to be helpful for some. I also feel that by using different non-invasive types of therapy whether it be acupuncture, inserts, better shoes....massage...cleaner diet....that some of these have worked wonders for so many that now suffer, that maybe it's time to try something different in our pursuit of comfort and relief from at times, the intractable , searing pains of PN. I recently talked with three women in a waiting room at my local hospital..when I noticed that they were all wearing Hoka shoes. They swore by them!! I am now dealing with pins and needles as well as extreme heel pain that causes me to walk on my toes..can't bear to put my heel down as the pain is too intense....and I'm an athlete!....not exercising..walking on my treadmill and outside is not an easy life sentence for me..so I'm always seeking out ways to lighten my load here.
Heat doesn't help me...but ice seems too..at least getting a bit numb is a different feeling then having to be conscious of my feet at every moment of the day. I also massage my feet a lot....getting more of a blood supply going...also taking supplements that aid in nerve damage, which have helped I feel. I would love to have anyone who's tried different walking shoes that have benefited their lives..please post for us!! What's making a difference??? Not satisfied with a "there's nothing that can be done" attitude! Bless you all!!!

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I am also an athlete. Hoka shoes made a difference for me, then Oofos. You can also have an MRI and ultrasound done on your feet just to rule out some structural causes.

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