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Gastroparesis with severe symptoms!

Digestive Health | Last Active: 6 days ago | Replies (450)
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@kjcairo98

Has anyone had luck finding a nutritionist who knows about gastroparesis? We were at Mayo Rochester and did not get to talk to the doctor until we had went home, thus did not ask for a referral to nutrition while there. I tried to reach out and get an appt with the nutritionist now and they won't schedule because we are out of state. We would have had to see them when we were there. I have had two nutritionists at home who knew nothing about gastroparesis and gave advice like "stop eating gluten." (about all I CAN eat is white bread and crackers - lol). I really with we would have been referred to nutrition while we were there. I have been eating so little for so long (and have some food aversion) that I am quite malnourished.

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Replies to "Has anyone had luck finding a nutritionist who knows about gastroparesis? We were at Mayo Rochester..."
capet309 | @capet309 | May 17 7:27am

Go to the website
Aboutgastroparesis.org

Resources
Dieticians
If you put in your state you will find recommended nutritionists.

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peggyjean | @peggyjean | May 17 12:27pm

I met with a nutritionist at Mayo Clinic & I knew more than she did.. Actually I found out more online & focused groups than anything the nutritionist told me… Trial & error is very helpful…. I don’t eat anything fresh….everything is cooked…. I’m lactose intolerant per tests from Mayo…. I eat small frequent meals & walk after eating even when I’m miserable, because that’s when I need it the most…. Even 5 minutes of walking around the house can help….. I take gasx when needed & Zofran helps with bloating also…. I can eat eggs, fish, & ground meats are usually tolerated….. it seems to be the amount that’s the trigger for me…. I keep educating myself & that helps & a loving family that understands because of my eating habits. I eat ice cream or a wanna be for me like cashew ice cream…. But my biggest find for me was the walking….. I could not tolerate any meds except the Zofran that the gastroenterologist offered….God’s Best For You…..

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