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Cardiac Amyloidosis

Heart & Blood Health | Last Active: May 17 12:52pm | Replies (14)

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@naiviv

My husband was diagnosed last year with Cardiac Amyloidosis at Mayo Clinic in Jacksonville FL. We live in Virginia so when we got to VA we called his other Cardiologists who have been treating him for other issues. In VA this group of Cardiologists have an Amyloidosis Clinic. My husband met the cardiologist in charge of the clinic and he told my husband he needed to start Vyndamax. When we heard the price we jumped from our chairs. But he was very kind in calling the Pfizer representative who visits this doctor and asked him about the Pfizer Copay Card. Pfizer and this physician talked about how this card worked. My husband has never being charge and he guesses that it covers everything that the Insurance does not covers. Ask your cardiologist about this Pfizer Copay Card. It worked for my husband. Strange that your cardiologist didn’t mention it. My husband is doing well and doesn’t have side effects with Vyndamax. This medication doesn’t cure Amyloidosis but slows it down enormously. My husband has Right side Heart Failure, takes Cardizem and a diuretic. He is doing well. Amyloidosis caused his Heart Failure and the damage is there, it is irreversible. I wish you can get information soon. Get well soon.

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Replies to "My husband was diagnosed last year with Cardiac Amyloidosis at Mayo Clinic in Jacksonville FL. We..."

Thank you for the info. I'm 70 yo. Thr nuclear test showed zero amyloid. I don't trust the CDC anymore. I'm leaning in the direction that the CDC is no longer reliable, I'm in very good physical shape. The surgery was only for the aorta and thickening of just one wall of my heart just below the aortic valve, thats all. The cardiologist just told me that they will just monitor it. I'm taking a small dose of metoprolol. I am having the DNA test to find if it is hereditary. But, I don't believe I really have it. They will do a cardiac MRI as well. But thank you for your help and I wish you and your husband well. I'm convinced I'm only gonna die of old age at this point.