I’m new to this forum but nice to hear I’m not the only one suffering. I’ve done ivig for a year and now doing rituximab as well I haven’t seen much improvement but haven’t gotten worse so I guess that’s a plus. There is a study going in through the Mayo Clinic that I just sent to my neurologist to see if it’s worth applying for. This chat won’t let me post the link because new. Sorry.
I will try anything at this point. I’ve lost my job, I can’t drive, I fall way too much, I’ve broken both leg needing surgery on one, broken foot, torn shoulder. I just would like a little bit of improvement to not be such a burden on my family