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Has anyone had a tilt table test or examination?

Autoimmune Diseases | Last Active: May 31 8:06am | Replies (36)

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@artemis1886

A neurologist does an EMG/nerve conduction test to test for neuropathy.
Yes, the motor neuropathy causes tremors. It’s misleading when you google motor neuropathy it says movement disorder to me they need to be clearer on that.
The SFN is confirmed by three biopsies. I had mine repeated and the SFN has became worse.
The cardiac autonomic neuropathy causes bradycardia/tachycardia I did a one month holter monitor test and was sent to an electrophysiologist then had a tilt table test. Once diagnosed they give you 8 years to live. The autonomic neuropathy affects the bladders, gastroparesis and so forth.
They are now testing me for CIDP. Which is an autoimmune type neuropathy and some other things by spinal tap.

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Replies to "A neurologist does an EMG/nerve conduction test to test for neuropathy. Yes, the motor neuropathy causes..."

Thank you for sharing, I hope you continue to get more answers and help! It sounds like you have a lot of knowledge about neuropathies! It’s very frustrating and confusing. When the neuropathy is not directly related to diabetes, it seems like it’s very hard to treat. I’m trying to understand more to help my 23 yr old son. He has seen many Neurologists & was diagnosed specifically with Autonomic Neuropathy, Peripheral Sensory Neuropathy, small fiber neuropathy, limited large fiber sensory dysfunction, compressive neuropathy in his hands, ulnar Neuropathy (elbows), carpal tunnel syndrome & frozen shoulders. His BP is high laying down 152/82 but he has an abnormally low resting heart rate (low 40’s) Sometimes it goes into the low 30’s when we are in the hospital. Then the monitors will show bradycardia & tachycardia all at the same time…it’s very scary to witness. Movement disorder Neurologist prescribed him midodrine for the tremors and the Autonomic dysfunction neurologist prescribed him propanolol for the high BP….but we are concerned of the side effects taking the two drugs together. He has to drink 130 oz of water a day, add extra salt to food, low impact exercise to keep the blood vessels open and blood flowing. He used to be on Florinef. He would faint a lot and have a lot of black out vision episodes…he’s come a long way since those days. Still gets very dizzy and faint but is able to catch it before fainting. Still experiencing the vision problems…lots of times he describes it as “shaky” vision now…the room shakes. I would like to ask for further heart testing as that is a very big concern! Thank you for sharing about your heart monitor testing…I think my son needs to do that test again.