My 23 yr old son suffers from SFN (some LFN). You mentioned you have tremors. My son has head to toe tremors that are getting worse over time. They diagnosed it as “tremors” but never give an exact reason why. He shakes so bad…especially when he is concentrating on something like trying to pour into a cup, writing with a pen and also when his adrenaline kicks in like watching an action movie or playing a video game…is that what you experience with the motor neuropathy? He also has Gastroparesis, dysmotilty in his esophagus, stomach & colon, POTS, Dysautonomia, Tachycardia/Bradycardia, Hypertension, Autoimmune disease, systemic Eosinophilic disease & Systemic Mastocytosis…He’s had multiple rounds of IVIG when he was in his teens as well. Currently he’s been experiencing severe pain in his lower back/spine for over a year and can hardly walk anymore (uses a wheelchair & walker). X-Ray, MRI & CT scans show nothing is structurally wrong. They say it could be his nerves but they don’t really know. I’m desperate to find answers to help him.
We are currently trying to get him to Mayo for treatment.