I know I've written before with respect to the issues that my husband has been going through since his esophagectomy last June (2023)—and I'm writing again because instead of getting better, he is getting worse. His cancer was in the cardia area and was Stage 1b...he did not go through chemo and/or radiation and you would expect his recovery to be quicker because of that but he is going through hell.

My husband is now 11-½ months post-op, still is unable to tolerate enteral formula (and we’ve tried four different brands), and continues to have chronic nausea and vomiting. He’s had issues with his j-tube (clogging, falling out, and leakage consisting of formula and bile). He’s had aspirational pneumonia twice as well as nutritional anemia.

He very recently had an EGD scan in the ER, where it was discovered that he has esophagitis. The doctor who performed the scan suggested that the pylorus be tightened up but the surgeon who performed the esophagectomy ruled against it.

The latest issue is a too-slow heart rate, erratic glucose readings and inadequate electrolytes. In addition, and I believe because of his failure to get proper nutrition, his red and white blood cells are very low, as is his hemoglobin. Now they want to take a bone marrow biopsy in hope of finding an answer as to why he is not producing enough blood….again I feel this is because of his lack of adequate nutrition. To that end, they will be providing nutrients via IV.

Anyone out there with similar experiences? Any suggestions? Help!