← Return to Vomiting and Nausea after BMT

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@loribmt

Hi @wakop. My heart goes out to your son. Having a bmt isn’t a walk on the beach and some of the side effects of early transplant can carry over for several months. However, I’m 2 months shy of my 5th Rebirth-day and want to let your son know that having the transplant will give him a second chance at life! It’s an amazing gift and well worth the effort.

At 60+ days he’s a little beyond the half-way point of the critical benchmark of 100 days. Though it’s not a magic number, by 100 days usually things start leveling out in blood numbers, adjustments to meds and recovery from the pre-conditioning chemo and the transplant itself. Considering everything your son went through, it is a great deal of trauma to the body and recovery is slow, but steady.

Nausea seemed to be my companion for well over 60 days. It was worse initially and unpredictable. I’d lost so much weight that it was getting concerning. Eating was a struggle. As the weeks went by, the nausea did lessen and eventually before 3 months was up I was fine. The period of waning nausea was usually in the morning immediately following a bm. That perplexed my doctor/team as well. There was nothing clinically wrong that they could find. I later realized that it may actually have been linked to my anti-nausea meds. While they helped immensely, the meds also have the tendency to stop the normal peristalsis of the intestines and that may have contributed to the nausea. Once I stopped taking them my guts improved.
I also felt better when I could drink more water. That was an issue for a while too…getting enough water daily. When I started drinking room temperature water that helped. Also I avoided anything that caused mucous in my throat such as milk.

It’s encouraging that everything checks out with your son and he’s doing great…aside for the nausea. I think this may just be a matter of time.
Has he tried any of the Queasy Drops candies or candied ginger. Both of those helped me with queasiness.
Is he finding there are some foods that don’t agree with him more than others?
May I ask what illness your son had that necessitated a transplant?

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Replies to "Hi @wakop. My heart goes out to your son. Having a bmt isn’t a walk on..."

Hi Lori,
He was diagnosed will ALL in July 2023. They did traditional chemotherapy the first month but it didn't work so they did chemo and added immunotherapy which brought him into remission in October 2023.
There really does not seem to be any rhyme or reason to his nausea and vomiting, it's very random. He is looking weight quickly (24 lbs in 3 months). He is still hospitalized and has zero appetite. I've tried some of his favorite foods and he barely touches them.
His mental health has really deteriorated in the past few days, he's irritable and just wants to sleep all day/night. He wants more than anything to get out of the hospital but is unable to meet the criteria of up and walking and eating.
As a Mom it is difficult to see him struggle so much. I just wish he could start feeling better. He told me, "everyone keeps telling me how good my numbers look, but I can't feel it." Thanks for listening.

Wendy