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Yale Paper: Long COVID/ME/CFS

Post-COVID Recovery & COVID-19 | Last Active: Jun 1 1:36pm | Replies (26)
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@jeindc

I gave you a 'hug' and it's not enough. I feel your pain, literally and figuratively. Today, I was fitted for lymphedema wraps, that took 11 months after contracting COVID to be diagnosed even tho I had multiple hospital and doc visits showing them that my legs were not "my" legs any more. Could it have been alleviated or curtailed if suggested sooner? We'll never know.

I'm just exhausted from going to doctors and getting stuff to treat symptoms and no one doing more.

So yes, this site and the ability to at least see and send to doctors what we're finding is the only way I can attempt to cope.

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Replies to "I gave you a 'hug' and it's not enough. I feel your pain, literally and figuratively...."
Lucy | @welchllb | May 16 9:03am

Thank you!!

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kgatlast | @kgatlast | May 17 10:40am

I, too, have been suffering (since 12/2022) from post Covid lymphedema…. Ankles, legs, hands, arms and likely head as well. No one seems to able to do anything but try to treat symptoms (leg wraps, compression socks and gloves, etc.)
I recently began homeopathic treatments… expensive but hopefully will show positive results.
I also have been accepted into a clinical “wearable device” long Covid study with Scripps in California. I’m keeping as proactive as possible. You are the only other person I have encountered with long Covid lymphedema. Hopefully we’ll get some positive way of attacking the cause.
Homeopath has found high titers for Epstein Barr virus. I will be getting IV ozone to treat that.
Good luck to you. I will share and results when I have them

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