← Return to Husband (43) showing signs of Mild Cognitive Impairment (MCI): Anyone?

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@happypappy2

My husband had his first major bleed 5 years ago (he was 62 years old), several micro-spells over the course of these 5 years and another major bleed 2 years ago - all which led to a Cerebral Amyloid Angiopathy(CAA) diagnosis. This is a horrible disease with no cure creates a lifestyle full of uncertainty. After the second bleed the state took his driving privileges away but he is obsessed with trying to get them reinstated. Simply said - CAA is where amyloid (protein) collects in the vessels in the brain thereby causing spontaneous bleeds that interfere with brain's ability to fully function. My husband's bleeds occurred in the areas of the brain that impact his judgement, speech, reading and processing. Physically he has always been very athletic and fit - he appears to still maintain that - with the exception of tremors in his left hand. He plays golf and watches alot of TV. He refuses to believe that he has something wrong with him - my heart breaks as I try to understand how to create a positive and loving home environment. He believes the brain bleeds occured because he drank wine and traveled extensively as a busy consultant - the wine being the culprit. He no longer drinks wine but now thinks beer is ok. So every night he drinks beer and enjoys our mealtimes. Meals have always been an important place for family connections. He is a strong personality and was placed on Seroquel to help calm his brain and reactions - I have had it reduced two times and the small amount he remains on is so necessary. He still gets easily frustrated - blames you or others for not understanding what he is trying to communicate. I realize that this is better than most of you may experience but I am truly drained - I do have alot of family emotional support - we do not live close to many of our family members and our kids are all grieving their Dad as well as caught up in their own children's lives......most have young babies and all have busy high pressure careers. I ask for help from them every couple of months so they can plan it out....and I can go off and get a break - my husband isn't happy about it and doesn't understand why I need to get away. I could share more but I do want to end on a positive note - taking a deep breath and living a life focused on joy and positivity helps! My heart is broken for anyone living with CAA or any related condition. All we can do is trust in our faith and lean on family and friends.

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Replies to "My husband had his first major bleed 5 years ago (he was 62 years old), several..."

Welcome @happypappy2, you might also wish to join members like you in some of the discussions on Cerebral Amyloid Angiopathy (CAA) here as well: https://connect.mayoclinic.org/search/discussions/?search=Cerebral%20Amyloid%20Angiopathy