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Meningioma: Anyone else? I'm frightened
Brain Tumor | Last Active: 8 hours ago | Replies (301)Comment receiving replies
Perhaps you have read about my experience 7 months ago. I had a 2.7 mm. meningioma that was 1/16 th of an inch from my optic nerve. The neurologist that I first consulted when the meningioma was found incidentally during a scan for something else referred me to a radiation oncologist as I was told it was too close to my optic nerve to do surgery. The radiation oncologist agreed. My daughter insisted I go to UCSF and talk to a neurosurgeon.
He said, "No problem, I do one or two a week." (specifically that close to the optic nerve)
The surgery was successful; the entire meningioma was removed.
The surgery was much easier than I had ever imagined. I was home on the third day. Except for the pain med given during surgery, I only took tylenol. One drawback was that I did have double vision for 3 1/2 months after my surgery. But, that resolved and I am doing well. I might add that it is imperative that you receive care at a top notch neurosurgical center.
Replies to "Perhaps you have read about my experience 7 months ago. I had a 2.7 mm. meningioma..."
I was diagnosed late spring last year 2024. Having light headedness and dizziness. Found a 3 cm on the front of my brain. Told like everyone else, slow growing, mainly benign. Saw my PCP for a follow up visit and shared more symptoms, like headaches, trouble speaking out words at times, confusion, difficulty concentrating, periodic ringing in ears. Did another MRI and it went from 3cm to 12 cm in about 7 months with significant findings. This was December 10th. Can't see my neurologist until Feb 6th to find out what the significant findings are. Since then, headaches are worse on that side of my head, constant pressure, head hurts to touch it in certain places, can feel pressure behind my eye now, vision has steadily decreased, concentration is worse, and even feel weak. I am truly concerned!
2.7 mm or cm?
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@mkoch Thank you for your reply. That gives me hope. Next week I have an appointment with a neurosurgeon at Duke University Hospitals- about three hours from my house. Duke is considered one of the top hospitals for neurosurgery and the surgeon I’m seeing for the consult specializes in meningiomas. I am hopeful that he’ll say the same thing your doctor said. Thanks again.