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Pain, tingling and fatigue

Brain & Nervous System | Last Active: May 15 7:44am | Replies (13)

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@cmccaffe81

Yes in my journey i saw a spine doctor he wouldnt say that that was def my root issue because the mri report said mild stenosis. I also saw a neuro surgeon who wouldnt touch me, said there was not enough damage for surgery at that point. And yes i do have all of those issues 😕. Ive seen so many doctors and no one has given me any reason for anything yet

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@cmccaffe81
It sounds like your symptoms need to be heard by a spine specialist who cares to listen and looks beyond the MRI alone. Did you get contrast with your MRI? I had to “fire” my neurologist and saw multiple spine specialists and a neurosurgeon who dismissed my symptoms and ignored my MRI which showed spinal cord flattening. I almost gave up but thank God I went to a 4th spine specialist who I found online with many high ratings from patients who went to him. The day I first met with him, he had me walk which showed my imbalance, tested reflexes and listened to all of my symptoms (was especially locked into and interested in my feeling like I was wearing cement boots when I walked, lost control of my bladder, had handwriting/fine motor skill decline, was dropping things I picked up, etc.) and immediately diagnosed me with cervical myelopathy. I finally felt validated for all of my suffering! He wanted to do surgery ASAP to stop the damage to my spinal cord and stabilize it because if I fell I could have been paralyzed. I was able to regain control of my bladder, the cement boot feeling was gone and my dropping things/handwriting improved. Don’t give up advocating for yourself!