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Hesitant to begin drug treatment for my osteoporosis
Osteoporosis & Bone Health | Last Active: Jun 5 8:10am | Replies (67)Comment receiving replies
@lolamarie I am also petite and for awhile hoped that DEXA's might not be accurate but they are adjusted for height and weight and in my case right on target since I fractured three vertebrae at -3.7.
I have a very limited diet and cannot tolerate most meds. I react almost instantly to the extent that docs think I might have an allergic condition called eosinophilic esophagitis. The list of sensitivities on my portal is ridiculous. I have had breast cancer, have lupus and maybe scleroderma, and atrial fibrillation with heart rate in the 190's. I could go on. I am not complaining, only showing you that even I could do the full course of Tymlos and my spine went to borderline from severe.
Many people also seem to do fine with Evenity,
I was alarmed at -4.4 but -5.6 is truly a reason to try meds in my opinion, as a person who has fractured. I hope I am not offending you. I just hope you will try. Tymlos' pen is 8 clicks. If you are nervous you can try two clicks and move up. I landed at 6-7 out of 8 and still did really well.
Many women take these meds with no side effects at all. But some drugs hang around in the system. Forteo and Tymlos are gone in a few hours (half life 1 hour).
Knowing what I know, I would be much more scared of fractures then meds. That was how I felt. I have trouble lifting, eating, breathing at times, and lots of pain. For awhile I needed help with daily living. It's not fun.
Replies to "@lolamarie I am also petite and for awhile hoped that DEXA's might not be accurate but..."
@windyshores I’m new to this chat but am so appreciative of your knowledge and generous advice to us all!
I may have missed your mention of it in a previous posting, but what’s your take on Reclast? I’ve had lumbar spine -3.5 for several years now and just saw a highly-respected bone specialist for the first time — she recommended a half-dose infusion of Reclast once a year (I’m 62). I’m already experiencing difficult side effects from 6 months on letrozole (breast cancer diagnosis last summer) and am quite frankly terrified of feeling even worse, so I’ve been putting off trying Reclast. Your description of vertebral fracture is sobering, however, as I live a fairly active life in NYC where walking a lot and carrying groceries etc is a daily necessity. I’d be grateful for any thoughts you might share on Reclast. Thank you, in advance!!! I hope you’re enjoying a pleasant weekend
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windyshores....thank you for your response...no, you have not offended me but I very much appreciate your input. I feel for you because I can identify with much of what you have had to go through although our experiences are different. Honestly, when I first read your reply and you said you were able to take Tymlos, I had hope....a big hope....but it didn't last, only briefly. I am very very very scared as I feel if Tymlos could kill me, it will.
I really don't know what I will do right now as I'm frozen with fear....either way scared to take the drugs and also scared not to take drugs. Thank you, even though I'm too scared to act on it right now, but you've given me some hope.................