Welcome @gilly08, I can imagine that your symptoms have to be a little frustrating to say the least now they are back worse than ever. I wonder if it might help to look through the other discussions on benign fasciculation syndrome to learn what others have share helps them. Here's a search link that lists the discussions and comments by other members - https://connect.mayoclinic.org/search/discussions/.

Have you thought about seeking another opinion or help at a teaching hospital or major health facility like Mayo Clinic?