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Just diagnosed Stage 3 CKD: Should I be referred to a nephrologist?

Kidney & Bladder | Last Active: Jun 28 2:35pm | Replies (110)
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@triciaot

@windyshores
My eGFR is 49 one week after a Reclast infusion. Does that sound right? 3 weeks prior to Reclast my eGFR was 83 and had been steady for 3 years at least.
I did a stomach pelvic CT scan last Friday because my stomach is larger on right side than the left with no known cause (I’m on tamoxifen). The scan came out clear of cancer but the blood work showed creatinine at 1.2 and the low eGFR.
You seem to have a broad knowledge on all things medically related to your health, so I thought I’d check with you.
The CT also showed some small kidney cysts, and mild thickening of my left adrenal glad that they thought might be hyperplasia. It’s always something!!! Although I might have lived to 100 never knowing some of this stuff!

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windyshores | @windyshores | May 14 7:03pm

@Rubyslippers you might want to talk to a nephrologist. I have a vague memory of someone having a much lower eGFR that recovered, but that might have been after IC contrast.

My nephrologist does say Reclast can affect kidneys, and some even have kidney failure. She recommends lower dose (1/5), IV hydration and slow infusion.

I hope you continue to get tested for that eGFR. Hoping it will go back up. Your current one isn't terrible but that is a big drop. Sorry I cannot answer- other than to suggest talking with a nephrologist who knows about Reclast.

If you can, let us know what you find out! My eGFR is already in the 40's so hoping it doesn't sink lower. Sorry that this has caused worry for you. Are you doing another Reclast?

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