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Prednisone to Kevzara

Polymyalgia Rheumatica (PMR) | Last Active: Jun 18 11:39am | Replies (31)

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@dadcue

Are you permanently off Kevzara without any relapses? I had a slightly low white count on Actemra but it wasn't deemed to be significant and it resolved on its own. I also had slightly elevated liver enzymes but that wasn't anything new. I was referred to a liver specialist who said my elevated liver enzymes were likely caused by nonalcoholic fatty liver disease (NAFLD). I didn't have to stop Actemra.

I'm interested in getting off Actemra but my rheumatologist doesn't think it is a good idea just yet. I am doing a bit of a test and waiting 7 weeks from one infusion to the next. I'm at week 5 and doing well so maybe I will be able to discontinue Actemra. I have Prednisone available just in case.

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Replies to "Are you permanently off Kevzara without any relapses? I had a slightly low white count on..."

So Mike, yes I am off permanently. Saw the hematologist today and my white blood count is now back in the normal range. It was a great bridge coming off prednisone and I knew the possible side effects. I would do it again.
Regards, John