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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: Jun 1 9:28am | Replies (36)

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@scarlettroams

Hi, I just found out two weeks ago that I have a meningioma on my right optic nerve. It’s 1 cm. I have an appointment with a neurosurgeon next week to determine a treatment plan. I have some vision loss which seems unlikely to return, even with surgery. I’m scared but trying to be positive- unlikely to be cancerous, very healthy otherwise, etc.

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Replies to "Hi, I just found out two weeks ago that I have a meningioma on my right..."

Perhaps you have read about my experience 7 months ago. I had a 2.7 mm. meningioma that was 1/16 th of an inch from my optic nerve. The neurologist that I first consulted when the meningioma was found incidentally during a scan for something else referred me to a radiation oncologist as I was told it was too close to my optic nerve to do surgery. The radiation oncologist agreed. My daughter insisted I go to UCSF and talk to a neurosurgeon.
He said, "No problem, I do one or two a week." (specifically that close to the optic nerve)
The surgery was successful; the entire meningioma was removed.
The surgery was much easier than I had ever imagined. I was home on the third day. Except for the pain med given during surgery, I only took tylenol. One drawback was that I did have double vision for 3 1/2 months after my surgery. But, that resolved and I am doing well. I might add that it is imperative that you receive care at a top notch neurosurgical center.