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Peripheral Neuropathy life changing

Neuropathy | Last Active: May 23 10:17am | Replies (93)

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@gilly08

I have what I call twingling, which is a mixture of twitching, tingly, prickling, sometimes burning in my legs, usually when I am sitting down or lying down in bed. They sometimes feel like tiny electric shocks sometimes. I've had this for ten years. I don't have any symptoms in my feet or upper limbs, apart from the odd twitch. I can walk for miles and no symptoms but as soon as I sit down the horrible twingling starts.
I had all the nerve conduction studies 10 years ago and was told I may have benign fasciculation syndrome. I managed to live with this for all these years, after the anxiety of some awful diagnosis had subsided, but now they are back worse than ever. I cannot sit down or lie down without the above symptoms coming on almost instantly. I am wondering if I have a peripheral neuropathy rather than BFS. It really is a problem even though I only have it in my legs....mostly.

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Replies to "I have what I call twingling, which is a mixture of twitching, tingly, prickling, sometimes burning..."

You would need to get a diagnosis from a doctor.

Welcome @gilly08, I can imagine that your symptoms have to be a little frustrating to say the least now they are back worse than ever. I wonder if it might help to look through the other discussions on benign fasciculation syndrome to learn what others have share helps them. Here's a search link that lists the discussions and comments by other members - https://connect.mayoclinic.org/search/discussions/?search=benign%20fasciculation%20syndrome.

Have you thought about seeking another opinion or help at a teaching hospital or major health facility like Mayo Clinic?

Consider Restless legs Syndrome. Sifrol gives amazing relief if it is RLS