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Cardiac Amyloidosis

Heart & Blood Health | Last Active: May 17 12:52pm | Replies (14)

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@loribmt

Welcome to Mayo Connect, @bobbyknik. Amyloidosis occurs when the body produces unusual proteins that bind together to form amyloids. These can collect in various organs of the body, including the heart. This is referred to as Cardiac Amyloidosis and it can be quite serious as it can thicken the heart wall and disrupt heart function. It makes it harder for the heart to fill with blood between heartbeats.

It sounds like you’re getting some conflicted reports with seeing the biopsy vs the imaging? Since the biopsy of your heart was taken directly from the organ involved that would be rather telling that there is amyloid involvement.
What has your doctor discussed with you about your treatment and the testing? What symptoms are you having?

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Replies to "Welcome to Mayo Connect, @bobbyknik. Amyloidosis occurs when the body produces unusual proteins that bind together..."

After having my aorta fixed at Mass General Hospital., I can now walk up ten flights of stairs without being out of breath. I can walk 2 miles. I'm not really having any fatigue symptoms. They biopsy said I have it. the nuclear test says I don't. It seems the tamafidis is of little value when you consider the cost. take a look at the manufacturers advertisement. I made a joke that they should prescribe the placebo for me.