← Return to Living with LPSVS (long post-COVID vaccination syndrome)

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@sandtoes

Mayo Clinic, here's my question. This is your forum. I assume someone is monitoring this. You read how all of us out here suffering with LC or PLCVS. Why is no one helping us?????!!!!!! WHY. So many of us have spent months or years being sent from one specialist to another with no help, no diagnosis. One of the specialists I was sent to said this to me when I pushed him for an opinion on my symptoms, "Doctors only look at what they can fix." The more I thought about it, the more that summed up my last frustrating year of doctor visits. Well, how about you Docs help us find a fix??!!! Or at least help us better cope with these symptoms. Life as I knew it is over. I can no longer exercise, be on my feet for longer than 20-30 minutes, do more than one chore in a day, work in my yard, on and on. So Mayo, why isn't anyone helping us?!! While venting here is good, help would be better.

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Replies to "Mayo Clinic, here's my question. This is your forum. I assume someone is monitoring this. You..."

I agree with this 100 percent.The doctors are only going to he able to help with what they can actually see from Tests which is basically useless to Long covid sufferers.Covid needs just as much research as cancer,HIV,etc.I am not sure,but for some reason the Government,CDC,half the world have completely forgotten about covid.It is almost like it never existed.The problem is that until it happens to one of them or a Family member or friend they are not going to be too concerned.No one knows the long term effects of covid or the vaccine.The people that created Covid in a lab should be the same people trying to figure out a cure.I went from a perfectly healthy person to disabled.Going from one specialist to another with no help.My life is destroyed.