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Cardiac Amyloidosis

Heart & Blood Health | Last Active: May 17 12:52pm | Replies (14)

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@bobbyknik

A biopsy of heart tissue said I have amyloidosis but the nuclear imaging test said I don't. Tamafidis seems to be hardly effective.

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Replies to "A biopsy of heart tissue said I have amyloidosis but the nuclear imaging test said I..."

Welcome to Mayo Connect, @bobbyknik. Amyloidosis occurs when the body produces unusual proteins that bind together to form amyloids. These can collect in various organs of the body, including the heart. This is referred to as Cardiac Amyloidosis and it can be quite serious as it can thicken the heart wall and disrupt heart function. It makes it harder for the heart to fill with blood between heartbeats.

It sounds like you’re getting some conflicted reports with seeing the biopsy vs the imaging? Since the biopsy of your heart was taken directly from the organ involved that would be rather telling that there is amyloid involvement.
What has your doctor discussed with you about your treatment and the testing? What symptoms are you having?

Hello @bobbyknik. I combined your discussion with an existing discussion titled, "Cardiac Amyloidosis" - https://connect.mayoclinic.org/discussion/cardiac-amyloidosis-1/ to meet members like @manning2000, @naiviv, @danab, @soonerfan and @jeannepasquinucci.

@bobbyknik, like @loribmt mentioned, which test did your provider think was more accurate?