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DiscussionHesitant to begin drug treatment for my osteoporosis
Osteoporosis & Bone Health | Last Active: Oct 20 10:56am | Replies (73)Comment receiving replies
Replies to "I wrote a really long response and lost my internet connection and it disappeared. I will..."
Thank you for your open and honest response to her question. You give encouragement and hope dosed with reality and caution, backed by life experience and research. To someone newly diagnosed like myself, this is huge. You are making a difference!
I concur with your thoughts @windyshores. -4.4 is a serious number and even though I am personally reticent to take potent drugs, I wouldn’t hesitate with a score like that. As you know, I started a bio-similar to Forteo because of my-3.1 spine score and suffered uncommon, serious side effects for the first 5 weeks (heart palpitations, chest pains, severe fatigue). I stuck it out hoping my body would adapt and it did!! I’m over two weeks without any symptoms thankfully.
I’m hopeful I get the same results you did, and I’m already considering trying Evenity afterwards. I’ll talk to my endocrinologist in 22 months about that:). I may just do Reclast, then take a 3 year break, then start Evenity. Not sure yet, but my fear of taking the drugs has been trumped by my worry of not being able to be active into my 70s and 80s!!
Thanks again for your time and contributions to the people on this site. It’s been invaluable to me.
I am just now seeing responses to my post. I so appreciate your thoughtful and detailed experience and advice. Yes, it is frightening to think about both the risks of treatment vs non treatment. “Between a rock and a hard place” seems to be the appropriate mantra for those of us trying to decide on treatment. Again, thank you, I have much to think about.
Windy, you are one of the best resources I have found for when I do take that plunge! I hate that you have to be the one to lead us through that dense forest, but am so grateful for your pioneering efforts and willingness to share!