← Return to First peripheral neuropathy … and now a sepsis infection? $%*&#@

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@dbeshears1

Hi @ray666 -
First, despite the content of your post, I am very glad you’re back! For reasons non- health related, my recent schedule has only allowed me few windows of time to contribute here and sometimes can only skim the headlines. But always in the back of my mind, I’ve wondered “Where’s Ray?” I had hoped your partner had managed to get you out on long hikes, or a lengthy world cruise and that you took a vacation from your phone (as unlikely that last part sounds) I am sorry to learn that it’s the nagging fear I had, that you may have had a set-back.
I have no experience with sepsis, but my whole sudden PN coincided with the discovery of severe infection (kidney/UTI) that got me hospitalized and took everything away from my legs. I just advise you to do every single leg exercises you can while being grounded. You’ve prided yourself on having leg strength throughout your PN, and without it, we would never be surviving the awful PN wobbliness and balance obstacles we endure. I know I’m preaching to the choir - work with your doctor on making sure the necessary rest is accompanied with maximal PT!
I’m thinking of you dear buddy, and your partner, that you get this battle behind and restored back to your old self, which you’ll appreciate even more. Now that you’ve gotten your faculties back, I’m sure you use some of your time researching while on your butt and find energy. Some antibiotics are friendlier to folks with PN vs others. Make sure your Neuro reviews your meds for input.
Welcome back, and as @njed always tells us, Keep Moving (as much as doc allows)!

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Replies to "Hi @ray666 - First, despite the content of your post, I am very glad you’re back!..."

Debbie!!!! (@dbeshears1), I'm so glad to be in touch with you again! I'm dashing out the door (dashing? read: wobbling) for an appointment with a wound specialist at a local hospital. I'll read your message more properly when I return. For the moment, however, I want you to know how much it has cheered me to find your post! Til later … –Ray

Hi again, Debbie (@dbeshears1)

I’m sorry I had to run off the way I did yesterday. I was off to meet yet another new doctor – this time the hospital’s wound care director. You know how those first meetings go – the doctor’s ol’ initial question: “So, tell me, how did all this start?” – and off you go! re-telling the story of what brought you to the doctor’s office in the first place.

The phrase you used to describe the experience of your kidney infection ( … took everything away from my legs… ) is a phrase I could easily use to describe this sepsis experience. That’s very much, if not precisely, what it has felt like: my legs had lost all their integrity. At least with my PN, I’d always felt my muscles had not totally abandoned me; they were only being contrarian, balking at being asked to prop me up the way I required.

There’s more I want to talk about, but I’m having to go slow. Sepsis has sapped my energy. May it suffice for the moment just to say it feels good to be back on Connect, even if able to visit only briefly and occasionally.

Super good wishes, Debbie!
Ray