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Support Group for Those of Us Living With Mild Dementia

Aging Well | Last Active: 9 hours ago | Replies (170)

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@janieohrn76

Is anyone on here getting the new Alzheimer’s infusion? The risks do seem greater than the benefits to me. How do others feel about this? Seemed like my Neurologist was pushing it, but I’m suspect! She said I tested at MCI with Beta amyloid positive blood test.

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Replies to "Is anyone on here getting the new Alzheimer’s infusion? The risks do seem greater than the..."

I did the four hour test with a neuropsychologist, as well as an ATN profile blood test and the beta amyloid test and an MRI. I was diagnosed as Mild Neurocognitive Disorder. My Neurologist says the new Medicine has too many risks for too little benefit. And i agree. I didnt engage in this to get the med. i engaged to get a sense of where on the dementia continuum i am.

@janieohrn76 I was approved and all set to start the infusions. Two days before my first scheduled one, I decided to look up the warnings on this Lequembi. When I read them, I immediately canceled and told the doctor no way.
I have mild dementia. The doctor’s PA was actually smiling and almost giddy when he realized that I could qualify for the drug.
There was no discussion other than, let’s hurry up and get you on this drug.

It’s brand new, fast-tracked through the FDA approval process, and Medicare quickly decided to pay 80% of the annual cost of $26,500.00!
Frankly, I am VERY SUSPICIOUS when the doctor acts like a kid in a candy store when a patient with mild dementia appears in their office, and they qualify for Lequembi.
Lequembi is only 27% effective, for slowing the disease while you take it. At that rate, I am not willing to take the risks.