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Aging Well | Last Active: 9 hours ago | Replies (170)Comment receiving replies
Replies to "Is anyone on here getting the new Alzheimer’s infusion? The risks do seem greater than the..."
@janieohrn76 I was approved and all set to start the infusions. Two days before my first scheduled one, I decided to look up the warnings on this Lequembi. When I read them, I immediately canceled and told the doctor no way.
I have mild dementia. The doctor’s PA was actually smiling and almost giddy when he realized that I could qualify for the drug.
There was no discussion other than, let’s hurry up and get you on this drug.
It’s brand new, fast-tracked through the FDA approval process, and Medicare quickly decided to pay 80% of the annual cost of $26,500.00!
Frankly, I am VERY SUSPICIOUS when the doctor acts like a kid in a candy store when a patient with mild dementia appears in their office, and they qualify for Lequembi.
Lequembi is only 27% effective, for slowing the disease while you take it. At that rate, I am not willing to take the risks.
I did the four hour test with a neuropsychologist, as well as an ATN profile blood test and the beta amyloid test and an MRI. I was diagnosed as Mild Neurocognitive Disorder. My Neurologist says the new Medicine has too many risks for too little benefit. And i agree. I didnt engage in this to get the med. i engaged to get a sense of where on the dementia continuum i am.