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Anyone experience pain, discomfort, tenderness along perineum post-RP?

Posted by mtb63 @mtb63, May 12 11:56am

I am coming up to 9 months post what was described as nerve-sparing-RP. (Gleason 3+4 PSA 6.9). First 2 re-checks has revealed PSA < .08. I am still experiencing what I can only describe as mild - but noticeable pain/discomfort or tenderness along perineum and thru urethra. The pain is felt with direct pressure (i.e., pressing along the area or sitting on a narrow - like bike seat, etc., or pinching the penis). I have been doing aggressive kegel exercises since catheter removal (i.e., 2 x/day standing 10-second holds + 2-10x fast contractions - sets of 5; and1 x/day lying down - 20-35-second holds - x 10 reps. Sometimes I feel this pain/discomfort during these exercises. Continence has improved significantly - using single thin shield/day - sometimes not needed. ED has not improved noticeably and am trying micro-dosing cialis daily to help rehab. I am wondering if anyone else has had these experiences? Thanks very much and best to everyone in this group!

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tuckerp | @tuckerp | May 12 12:06pm

when I started I did so many kegels that I could not sit. I had that muscle so sore I thought I might have damaged something. I backed off the kegels and it started to ease up.

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web265 | @web265 | May 13 7:38am

I had pain in the perineum for about 4-5 mos. I went back to the gym as soon as I got the green light from the doc and found that anytime I sat on a tapered bench it caused pain, sometimes it was also like pushing a "leak" button. When sitting on something contoured that described above I kind of side saddled it putting the weight on one glute or the other. Obviously that's not going to help much with a bike seat..

It simply got better over time. I think around 9 mos it was mostly gone. Patience is your friend here. You have to get used to the new you!

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ssonkin | @ssonkin | May 13 7:07pm

I had occasional perineal pain for most of the first year after my prostatectomy. I also developed a reoccurrence of an inguinal hernia, so some of the pain may have been related to the hernia. Time and hernia surgery have eliminated that pain, but I still occasionally get muscle spasms if I overdo it with my Kegel exercises.

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mtb63 | @mtb63 | May 14 12:08pm
In reply to @ssonkin "I had occasional perineal pain for most of the first year after my prostatectomy. I also..." + (show)
@ssonkin

I had occasional perineal pain for most of the first year after my prostatectomy. I also developed a reoccurrence of an inguinal hernia, so some of the pain may have been related to the hernia. Time and hernia surgery have eliminated that pain, but I still occasionally get muscle spasms if I overdo it with my Kegel exercises.

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There are hints of inguinal hernia-like pain. I had a lapro-inguinal hernia surgery 11 years prior to RP. It was a slight "complicating factor" in my RP surgery (because the "mesh" they used in hernia surgery made access to prostate and related areas more challenging). That pain is in a different area - but very interesting to hear of your experience. Thank you!

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