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Anyone out there with Behçet's and vasculitis?

Autoimmune Diseases | Last Active: May 21 12:58pm | Replies (11)

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@slkanowitz

Lara, there’s a lot of overlap between autoimmune disease symptoms and lab results so it isn’t always 100% clear especially at first what all the culprits are. Many of us have multiple AI conditions (I have 4). The dry eyes make me think of Sjögrens Syndrome. This is treated symptomatically, but provides some relief. It’s usually accompanied by dry mouth too. Your overall situation with arthritis, mouth and nose sores, etc should be treated with meds that suppress the immune system, not “shut it off”! The biggest concern IMO is the PAH, aneurysm, and vasculitis. I’m sure that’s your biggest concerns as well. I would make sure you have been checked for antiphospholipid syndrome, as that’s related to lupus and other AI disorders and predisposes one to blood clots, a hazard in Behcets. It requires blood thinners for prevention. I do hope you get good care from new rheumatologist and respond well so you feel better! Stay safe!

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Replies to "Lara, there’s a lot of overlap between autoimmune disease symptoms and lab results so it isn’t..."

I need to mention that antiphospholipid syndrome to my cardiovascular surgeon. I thought I'd been checked for that back when I first saw the cardiovascular surgeon. Turns out, I haven't. Thank you!