← Return to Living with LPSVS (long post-COVID vaccination syndrome)

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@sarahm73

I am sorry to hear you are struggling with diagnosis. As I mentioned in my original comment, I was never positive on the ANA tests, but when my rheumatologist did a series of antibody tests, I tested positive for the Sjogren’s antibody. I never had overwhelming dry eyes or mouth that I would even consider them symptoms. Mine was the excruciating and debilitating pain in my joints and extremely high inflammation that had me leaning towards autoimmune conditions. Also, because I had already developed one autoimmune disease with APS, I knew I was more susceptible for others. I am on blood thinners due to my APS, so we were limited to only one option in med for treatment of my Sjogren’s, which is hydroxychloroquine (Plaquenil). I also completely changed my diet at the same time, following an anti inflammation diet. It can take up to 12 weeks before you see the benefits of the hydroxychloroquine, so I was doing anything I could to get relief. The diet helped immensely, cutting my pain in half, and then after about 6 weeks I was feeling the effects of the med too. I can’t even begin to express what it has felt like to feel like myself again, and not be crippled with pain. I have also continued the diet as it is absolutely worth the work for the relief it provides along with my med. I hope you find the answers you need to get relief as well.

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Replies to "I am sorry to hear you are struggling with diagnosis. As I mentioned in my original..."

Thankyou so much for replying!My primary gave me Plaquenil to try out,but I have only been on it for 6 days ans feel nothing.Maybe it is too soon.My Primary is the only one that has tried to help through this whole ordeal.I have the extremely dry eyes,but horrible muscle pain and extreme weakness in the shoulders,neck,uppers arms,pelvis and trunk of my body.I have gone to several neurologists and asked about a bunch of diseases and all my tests come back negative.I already have Hashimito's.I had several years of extreme periods where I ended up with Anemia.I had a one time iron infusion and possibly got covid at the same time.I think all of that and working in Healthcare during the pandemic set my body into some kind of shock.I know extreme stress can bring on Autoimmune too.That is how my Hashimito's came on.