← Return to Living with LPSVS (long post-COVID vaccination syndrome)
DiscussionLiving with LPSVS (long post-COVID vaccination syndrome)
Post-COVID Recovery & COVID-19 | Last Active: 5 days ago | Replies (108)Comment receiving replies
Replies to "Hello!Can I ask you what your treatment for Sjogrens is?I have actually had 3 positive ANA's..."
I am sorry to hear you are struggling with diagnosis. As I mentioned in my original comment, I was never positive on the ANA tests, but when my rheumatologist did a series of antibody tests, I tested positive for the Sjogren’s antibody. I never had overwhelming dry eyes or mouth that I would even consider them symptoms. Mine was the excruciating and debilitating pain in my joints and extremely high inflammation that had me leaning towards autoimmune conditions. Also, because I had already developed one autoimmune disease with APS, I knew I was more susceptible for others. I am on blood thinners due to my APS, so we were limited to only one option in med for treatment of my Sjogren’s, which is hydroxychloroquine (Plaquenil). I also completely changed my diet at the same time, following an anti inflammation diet. It can take up to 12 weeks before you see the benefits of the hydroxychloroquine, so I was doing anything I could to get relief. The diet helped immensely, cutting my pain in half, and then after about 6 weeks I was feeling the effects of the med too. I can’t even begin to express what it has felt like to feel like myself again, and not be crippled with pain. I have also continued the diet as it is absolutely worth the work for the relief it provides along with my med. I hope you find the answers you need to get relief as well.