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@raven1955

Yes, I've controlled my reduction of prednisone. My first 3 years of PMR were a mess, mainly because I had 2 different rheumatologists that were hell bent that I should be off prednisone inside of 2 years time. The fast reduction of prednisone dose lead me to have 3 nasty flare ups and after almost 3 years I was back up to 20 mg to control the pain. Like you, I learned from others that it wasn't a case of constantly reducing the dose but doing so as your body allowed. Without giving the whole tale, after 8 years I've just gotten to zero dose one week ago. No guarantee that the PMR is totally gone but I'm hoping. Once I got down below 4mg, my 4th rheumy made the comment that he had no issue if I was on a light dose of prednisone forever, as the side effects at that level are minimal. The dose needed is the dose that's effective. If you get too low, your body will let you know and one has to increase the dose so you can function with minimal discomfort. We live with a demon in our bodies and have to keep it sedated with prednisone so we can have a decent quality of life. Hopefully we get to zero dose but ultimately it's whatever keeps us functioning with minimal or no pain. That's really what it's all about.

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Replies to "Yes, I've controlled my reduction of prednisone. My first 3 years of PMR were a mess,..."

@raven1955
I find your post very helpful. I am complete agreement that the main thing is keeping this thing under control because if you don't, you get back to square one and have to start the process all over again. My husband has PMR and then got GCA so we've been there. We are now dealing with the GCA he developed this February. He's had PMR since May 2023. He had tapered from 30 mg down to 12.5 mg when he developed new and troubling symptoms which ended up being Giant Cell Arteritis (GCA.) I shared what happened on this thread if you're interested.