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@wig

It doesn't sound as though your rheumatologist took your APS very seriously. At first, they didn't with me either because it was only one lipid and not severe. (My doctor deduced APS from a test of my lipids). They were clutching at straws not knowing why I'd suddenly lost my hearing. I was put on blood thinners and as I said no apparent further decline in hearing. I'm very sorry about your hearing loss. Did it happen suddenly? Unfortunately there's no way to look into the inner ear so impossible to definitively diagnose blood clots. But I would be interested if your new rheumatologist thinks there could be a connection. I was diagnosed by a team of neurologist, hematologist and my GP. Let me know of any further development. I also have (or have had) a number of autoimmune diseases as well as APS. Crohns when I was young, Reynauds syndrome -- not that serious. Good luck and let me know what develops.

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Replies to "It doesn't sound as though your rheumatologist took your APS very seriously. At first, they didn't..."

@wig I did seem to lose hearing suddenly. The audiologist suggested for me to go to a good ENT to check for Meniere’ disease since I have new hearing loss, dizziness, fullness in ears, etc. I am also waiting for results from a brain MRI with and without contrast to rule out MS and hope it will show anything else that may be affecting hearing/vision (understand blood vessels should show up and they can see inner ear). I’ll let you know what I learn. Good luck to you managing your health and preserving what hearing you have.