Hi Pam
I have completed my chemo, surgery, etc. just recently and am in remission. I was stage 3C. I think your success for remission may depend somewhat on your life style. No sugar. Go on a Mediterranean diet, exercise, meditate, get massages. Your chances of beating this thing are very good. Keep up your spirits. You Will win!
I also went into remission , but didn’t stop eating what I like. I also know a friend who said he didn’t stop sugar in his food and had cancer in 2 parts of his body, throat and prostate, he’s been in remission now for 17 years .
Life is short, I want to enjoy mine. There isn’t the data about a lot of the things people say.
Trust the facts about what we have to stop it now and maybe we will have something that truly works.
I also went into remission , but didn’t stop eating what I like. I also know a friend who said he didn’t stop sugar in his food and had cancer in 2 parts of his body, throat and prostate, he’s been in remission now for 17 years .
Life is short, I want to enjoy mine. There isn’t the data about a lot of the things people say.
Trust the facts about what we have to stop it now and maybe we will have something that truly works.
Hi Rochelle. I hear you! We are all different and probably react differently to various treatments. I love to exercise as it gives me the strength and energy to do activities I enjoy and would otherwise avoid, like tennis. Because of my treadmill I have tons of energy for my age, 80! I enjoy my Mediterranean diet and occasionally break from it and feel stomach distress the next day. My body actually now prefers the more vegetarian food. I have always tried to maintain a desirable weight, so sugar has been on my taboo list. Sleep, meditation and massages help me to relax and maintain a positive attitude. Just wish my harp playing would also improve!!?!!? There are so many ovarian cancers clinicals going on around the world that I feel confident a definitive cure is close at hand, even for reoccurrence. Mayo, AZ is very diligently studying a metabolic life style in this regard. My wish for you, Rochelle is to continue to enjoy life. Keep up the good spirts!
Hi Rochelle. I hear you! We are all different and probably react differently to various treatments. I love to exercise as it gives me the strength and energy to do activities I enjoy and would otherwise avoid, like tennis. Because of my treadmill I have tons of energy for my age, 80! I enjoy my Mediterranean diet and occasionally break from it and feel stomach distress the next day. My body actually now prefers the more vegetarian food. I have always tried to maintain a desirable weight, so sugar has been on my taboo list. Sleep, meditation and massages help me to relax and maintain a positive attitude. Just wish my harp playing would also improve!!?!!? There are so many ovarian cancers clinicals going on around the world that I feel confident a definitive cure is close at hand, even for reoccurrence. Mayo, AZ is very diligently studying a metabolic life style in this regard. My wish for you, Rochelle is to continue to enjoy life. Keep up the good spirts!
Hello, thanks for listening. I feel very lucky to have a husband that is a Specialist , but not in Cancer and he knows the questions to ask and they speak the same language . He has been a huge help for me. I’m 71, and feel very happy for the wonderful life I’ve had and the great friends too.
The young women are the ones I pray will see a cure in the near future , meanwhile my trust is in God and My doctors.
Wondering how you are doing. Have you had your appointment at Mayo? I'm hoping they will provide you with the help you need and that you will feel confident in how to proceed.
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!
I am very surprised that the Mayo Clinic did not set up an appointment for you. Perhaps you should contact them again. I was diagnosed with ovarian clear cell two and a half years ago which is obviously different than the uterine form. Were you exposed to DES? For those of us with OCCC, most of us had endometriosis. As a physician, I would think they would recognize your desire to inquire about alternative treatments that might be available.
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!
@m1b1r9, I agree with Odette that you may wish to contact Mayo Clinic again to get an explanation as to why you were declined an appointment. I believe you mentioned that you were receiving treatment at MD Anderson. It is possible that reviewing your case, the physicians assessed that the care and treatments you are receiving is what they would recommend and didn't want you to incur additional costs for evaluation or travel. Or perhaps it was a capacity issue at the Arizona location. If travel is not an issue, you may inquire about an appointment the Florida or Minnesota locations.
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!
While we wait for others to return to the discussion, we look forward to getting to know more about you. Are you looking for information about ovarian cancer for yourself or for someone you care for?
A best friend of mine, passed after a horrific fight with ovarian cancer. Both of us took clomid during our fertility work ups and I took perganol with an unsuccessful IVF in the 1980's. Like the women with the braca gene, afraid of getting cancer and having a complete mastectomy, I wonder if I should have my ovaries removed, due to the overstimulation of my ovaries, through in my early thirties. Perhaps, I should just live by faith alone.
A best friend of mine, passed after a horrific fight with ovarian cancer. Both of us took clomid during our fertility work ups and I took perganol with an unsuccessful IVF in the 1980's. Like the women with the braca gene, afraid of getting cancer and having a complete mastectomy, I wonder if I should have my ovaries removed, due to the overstimulation of my ovaries, through in my early thirties. Perhaps, I should just live by faith alone.
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I also went into remission , but didn’t stop eating what I like. I also know a friend who said he didn’t stop sugar in his food and had cancer in 2 parts of his body, throat and prostate, he’s been in remission now for 17 years .
Life is short, I want to enjoy mine. There isn’t the data about a lot of the things people say.
Trust the facts about what we have to stop it now and maybe we will have something that truly works.
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Hug
3 ReactionsHi Rochelle. I hear you! We are all different and probably react differently to various treatments. I love to exercise as it gives me the strength and energy to do activities I enjoy and would otherwise avoid, like tennis. Because of my treadmill I have tons of energy for my age, 80! I enjoy my Mediterranean diet and occasionally break from it and feel stomach distress the next day. My body actually now prefers the more vegetarian food. I have always tried to maintain a desirable weight, so sugar has been on my taboo list. Sleep, meditation and massages help me to relax and maintain a positive attitude. Just wish my harp playing would also improve!!?!!? There are so many ovarian cancers clinicals going on around the world that I feel confident a definitive cure is close at hand, even for reoccurrence. Mayo, AZ is very diligently studying a metabolic life style in this regard. My wish for you, Rochelle is to continue to enjoy life. Keep up the good spirts!
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Helpful -
Hug
1 ReactionSo sorry.... your name is Pam! Apologies!
Wondering how you are doing. Have you had your appointment at Mayo? I'm hoping they will provide you with the help you need and that you will feel confident in how to proceed.
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!
I am very surprised that the Mayo Clinic did not set up an appointment for you. Perhaps you should contact them again. I was diagnosed with ovarian clear cell two and a half years ago which is obviously different than the uterine form. Were you exposed to DES? For those of us with OCCC, most of us had endometriosis. As a physician, I would think they would recognize your desire to inquire about alternative treatments that might be available.
@m1b1r9, I agree with Odette that you may wish to contact Mayo Clinic again to get an explanation as to why you were declined an appointment. I believe you mentioned that you were receiving treatment at MD Anderson. It is possible that reviewing your case, the physicians assessed that the care and treatments you are receiving is what they would recommend and didn't want you to incur additional costs for evaluation or travel. Or perhaps it was a capacity issue at the Arizona location. If travel is not an issue, you may inquire about an appointment the Florida or Minnesota locations.
Here is some further information about HIPEC from Mayo Clinic proceedings written for medical professionals that may interest you:
- Cytoreductive surgery and HIPEC offers effective treatment for selected patients with peritoneal carcinomatosis https://www.mayoclinic.org/medical-professionals/cancer/news/cytoreductive-surgery-and-hipec-offers-effective-treatment-for-selected-patients-with-peritoneal-carcinomatosis/mac-20429726
What treatment are you currently getting?
@m1b1r9, how are you doing?
A best friend of mine, passed after a horrific fight with ovarian cancer. Both of us took clomid during our fertility work ups and I took perganol with an unsuccessful IVF in the 1980's. Like the women with the braca gene, afraid of getting cancer and having a complete mastectomy, I wonder if I should have my ovaries removed, due to the overstimulation of my ovaries, through in my early thirties. Perhaps, I should just live by faith alone.
@cbaird, do you have the BRCA gene?